Looking for more resources?  Try these!

Want some quick tips right now?
Check out Dr. Meghan Marsac's blog on Psychology Today!
https://www.psychologytoday.com/us/contributors/meghan-l-marsac-phd
Looking for a book with specific strategies about how parents can help their child (and siblings, and their selves) with medical care?
Take a look at this new release co-written by Dr. Meghan Marsac (Cellie Coping Company CEO) and Melissa Hogan (Mom of a child with a rare disease)! 
Afraid of the Doctor: Every Parent's Guide for Managing and Prevention Medical Trauma
www.AfraidoftheDoctor.com 

Websites

GENERAL MEDICAL INFORMATION FOR PARENTS

www.healthcaretoolbox.org/for-parents-and-children.html

www.courageousparentsnetwork.org

 

CANCER

www.childrensoncologygroup.org/index.php/cog-family-handbook
American Cancer Society (ACS): www.cancer.org
Starbright World: www.starbrightworld.org
Momcology: www.momcology.org
Siblings of Children with Cancer: www.alexslemonade.org/campaign/supersibs-sibling-support-childhood-cancer-families

 

COVID-19

https://www.healthcaretoolbox.org/tools-and-resources/covid-19-for-children-and-families.html

 

EOSINOPHILIC ESOPHAGITIS

https://apfed.org/
https://curedfoundation.org
AllergyHome.org/Handbook

FOOD ALLERGY

FoodAllergy.org
AllergyHome.org/handbook
PeanutAllergy.com
LaurensHope.com
PeanutAllergyfacts.org
TalkingPeanutAllergy.com/resources
PBSkids.org/arthur/health/allergy/resources
KidsWithFoodallergies.org
AllergyHome.org

 

GI MOTILITY CONDITIONS

International Foundation for Functional Gastrointestinal Disorders: www.iffgd.org
Association of Gastrointestinal Motility Disorders: www.agmd-gimotility.org
www.chop.edu/centers-programs/suzi-and-scott-lustgarten-center-gi-motility

www.chop.edu/conditions-diseases/motility-disorders

 

INJURY

www.AfterTheInjury.org

kidsaccident.psy.uq.edu.au
www.brainline.org/landing_pages/features/blkids.html
www.parentcenterhub.org/repository/tbi/#parents
www.nctsn.org/resources/audiences/parents-caregivers

 

SICKLE CELL DISEASE

www.sicklecelldisease.org/
www.ascaa.org/
www.nhlbi.nih.gov/new/sicklecell.htm
ghr.nlm.nih.gov/condition/sickle-cell-disease

 

SIBLINGS OF CHILDREN WITH MEDICAL CONDITIONS

Siblings of Children who are Hospitalized: www.chop.edu/health-resources/support-siblings-hospitalized-child
Siblings of Children with Disabilities Resource List: www.pacer.org/parent/php/php-c50.pdf
Siblings of Children with Disabilities: www.psychologytoday.com/us/blog/band-brothers-and-sisters/201406/siblings-children-disabilities
Siblings of Children with Special Needs: www.med.umich.edu/yourchild/topics/specneed.htm
Siblings of Children with Chronic Illnesses: www.healthychildren.org/English/health-issues/conditions/chronic/Pages/Siblings-of-Children-with-Chronic-Ilnesses.aspx
Siblings of Children with Cancer: www.alexslemonade.org/campaign/supersibs-sibling-support-childhood-cancer-families
Caring for Children with Illness: www.courageousparentsnetwork.org/
Tip Sheets for Parents: www.HealthcareToolBox.org/for-parents-and-children/helping-siblings.html

Books

CANCER

• Chemo, Craziness, and Comfort, My book about childhood cancer by Nancy Keene and Trevor Romain
• My Cancer Days by Courtney Filigenzi
• The Long and Short of It by Barbara Meyers & Lydia Criss Mays
• Nowhere Hair by Sue Glader
• The Invisible String by Patrice Karst
• Life Isn’t Always a Day at the Beach The Nebraska Division of the American Cancer Society

• Living with Childhood Cancer by Leigh Woznick and Carol Goodheart
• Childhood Leukemia: A Guide for Families, Friends, and Caregivers, 4th ed. by Nancy Keene
• When Your Child is Sick by Joanna Breyer
• Childhood Cancer Survivors: A Practical Guide to Your Future, 3rd ed. by Nancy Keene, Wendy Hobbie, Kathy Ruccione

 

EOSINOPHILIC ESOPHAGITIS

• Woolfred Cannot Eat Dandelions by Claudine Crangle
• Eating Isn’t Always Easy by Nancy Rotter
• Macaroni Isn’t the Same Without Cheese by Qian Yuan and Nancy Rotter
• Why Can’t I Have a Cupcake by Betsy Childs
• The Bugabees: Friends with Food Allergies by Amy Recob
• My Tubey Goes to School by Rhiannon Merritt-Rubadue
• There’s More than One Way to Eat by Rhiannon Merritt-Rubadue
• A Day In The Life of a Tube Fed Boy/Girl by Rhiannon Merritt-Rubadue

FOOD ALLERGY

The Bugabees: Friends with Food Allergies By Amy Recob
Horace and Morris Say Cheese by James Howe
The Princess and the Peanut Allergy by Wendy McClure
Daniel Has an Allergy by Angela C. Santomero
Food Allergies and Me: A Children’s Book by Juniper Skinner

 

SIBLINGS OF CHILDREN WITH MEDICAL CONDITIONS

• Oh Brother! Growing up with a Special Needs Sibling by Natalie Hale
• Views from our Shoes: Growing Up with a Brother or Sister with Special Needs edited by Donald Myer
• Growing Up with a Brother or Sister with Special Needs: A Book for Sibs by Donald Meyer and Patricia Vadasay
• Being the Other One: Growing up with a Brother or Sister Who Has Special Needs by Kate Strohm
• The Invisible String by Patrice Karst