Looking for more resources? Try these!
Want some quick tips right now?
Check out Dr. Meghan Marsac's blog on Psychology Today!
https://www.psychologytoday.com/us/contributors/meghan-l-marsac-phd
Looking for a book with specific strategies about how parents can help their child (and siblings, and their selves) with medical care?
Take a look at this new release co-written by Dr. Meghan Marsac (Cellie Coping Company CEO) and Melissa Hogan (Mom of a child with a rare disease)!
Afraid of the Doctor: Every Parent's Guide for Managing and Prevention Medical Trauma
www.AfraidoftheDoctor.com
Websites
GENERAL MEDICAL INFORMATION FOR PARENTS
www.healthcaretoolbox.org/for-parents-and-children.html
www.courageousparentsnetwork.org
CANCER
Children's Oncology Group: www.childrensoncologygroup.org/index.php/cog-family-handbook
American Cancer Society (ACS): www.cancer.org
Starbright World: www.starbrightworld.org
Momcology: www.momcology.org
Siblings of Children with Cancer: www.alexslemonade.org/campaign/supersibs-sibling-support-childhood-cancer-families
Support for Individuals Touched by Cancer (Adults, Family, Friends, Kids): www.CancerSupportCommunity.org
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COVID-19
https://www.healthcaretoolbox.org/tools-and-resources/covid-19-for-children-and-families.html
EOSINOPHILIC ESOPHAGITIS
https://apfed.org/
https://curedfoundation.org
AllergyHome.org/Handbook
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FOOD ALLERGY
FoodAllergy.org
AllergyHome.org/handbook
PeanutAllergy.com
LaurensHope.com
PeanutAllergyfacts.org
TalkingPeanutAllergy.com/resources
PBSkids.org/arthur/health/allergy/resources
KidsWithFoodallergies.org
AllergyHome.org
GI MOTILITY CONDITIONS
International Foundation for Functional Gastrointestinal Disorders: www.iffgd.org
Association of Gastrointestinal Motility Disorders: www.agmd-gimotility.org
www.chop.edu/centers-programs/suzi-and-scott-lustgarten-center-gi-motility
www.chop.edu/conditions-diseases/motility-disorders
INJURY
kidsaccident.psy.uq.edu.au
www.brainline.org/landing_pages/features/blkids.html
www.parentcenterhub.org/repository/tbi/#parents
www.nctsn.org/resources/audiences/parents-caregivers
SICKLE CELL DISEASE
www.sicklecelldisease.org/
www.ascaa.org/
www.nhlbi.nih.gov/new/sicklecell.htm
ghr.nlm.nih.gov/condition/sickle-cell-disease
SIBLINGS OF CHILDREN WITH MEDICAL CONDITIONS
Siblings of Children who are Hospitalized: www.chop.edu/health-resources/support-siblings-hospitalized-child
Siblings of Children with Disabilities Resource List: www.pacer.org/parent/php/php-c50.pdf
Siblings of Children with Disabilities: www.psychologytoday.com/us/blog/band-brothers-and-sisters/201406/siblings-children-disabilities
Siblings of Children with Special Needs: www.med.umich.edu/yourchild/topics/specneed.htm
Siblings of Children with Chronic Illnesses: www.healthychildren.org/English/health-issues/conditions/chronic/Pages/Siblings-of-Children-with-Chronic-Ilnesses.aspx
Siblings of Children with Cancer: www.alexslemonade.org/campaign/supersibs-sibling-support-childhood-cancer-families
Caring for Children with Illness: www.courageousparentsnetwork.org/
Tip Sheets for Parents: www.HealthcareToolBox.org/for-parents-and-children/helping-siblings.html
Books
CANCER
• Chemo, Craziness, and Comfort, My book about childhood cancer by Nancy Keene and Trevor Romain
• My Cancer Days by Courtney Filigenzi
• The Long and Short of It by Barbara Meyers & Lydia Criss Mays
• Nowhere Hair by Sue Glader
• The Invisible String by Patrice Karst
• Life Isn’t Always a Day at the Beach The Nebraska Division of the American Cancer Society
• Living with Childhood Cancer by Leigh Woznick and Carol Goodheart
• Childhood Leukemia: A Guide for Families, Friends, and Caregivers, 4th ed. by Nancy Keene
• When Your Child is Sick by Joanna Breyer
• Childhood Cancer Survivors: A Practical Guide to Your Future, 3rd ed. by Nancy Keene, Wendy Hobbie, Kathy Ruccione
EOSINOPHILIC ESOPHAGITIS
• Woolfred Cannot Eat Dandelions by Claudine Crangle
• Eating Isn’t Always Easy by Nancy Rotter
• Macaroni Isn’t the Same Without Cheese by Qian Yuan and Nancy Rotter
• Why Can’t I Have a Cupcake by Betsy Childs
• The Bugabees: Friends with Food Allergies by Amy Recob
• My Tubey Goes to School by Rhiannon Merritt-Rubadue
• There’s More than One Way to Eat by Rhiannon Merritt-Rubadue
• A Day In The Life of a Tube Fed Boy/Girl by Rhiannon Merritt-Rubadue
FOOD ALLERGY
The Bugabees: Friends with Food Allergies By Amy Recob
Horace and Morris Say Cheese by James Howe
The Princess and the Peanut Allergy by Wendy McClure
Daniel Has an Allergy by Angela C. Santomero
Food Allergies and Me: A Children’s Book by Juniper Skinner
SIBLINGS OF CHILDREN WITH MEDICAL CONDITIONS
• Oh Brother! Growing up with a Special Needs Sibling by Natalie Hale
• Views from our Shoes: Growing Up with a Brother or Sister with Special Needs edited by Donald Myer
• Growing Up with a Brother or Sister with Special Needs: A Book for Sibs by Donald Meyer and Patricia Vadasay
• Being the Other One: Growing up with a Brother or Sister Who Has Special Needs by Kate Strohm
• The Invisible String by Patrice Karst